Welcome to our patient association

The association was founded as the world's first patient association for the diagnosis Aortic dissection September 19, 2014 of seventeen (17) diagnosis carriers. Now two years later we are over one hundred (100) members of the Association of whom 70 are diagnosed carriers. The main diagnosis is the rare diagnosis Aortic dissection. Those with the diagnoses aortic aneurysms and dissections of the arteries associated with the aorta are also very welcome as diagnosis bearer to the association. The association also offers membership to family members, and support memberships for friends or someone who has experienced that a friend or family member passed away in our disease and now either wants to support or find support in our association.
The association's anniversary has become the World Day of the disease aortic dissection. Aortic Dissection Awareness Day - September 19. The association is, since 2014 a member of the National Association of Rare Disorders (Sweden) and since January 2015 Eurordis (Europe).

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Diagnosis Aortic Dissection

Aortic dissection It occurs when the inner layer of the aorta (intima) is broken or ruptures so that blood starts leaking out between the inner and outer layer of the aortic wall. This then starts spreading out and causes a splitting

membership

Membership

The patient association Aortic Dissection Association Scandinavia – is a non-profit official patient organization with members in Denmark, Norway and Sweden. The association was founded as the world’s first patient association for the rare disease of Aortic Dissection in the

family

Contact

SUPPORT STAFF Do you need to talk to someone who experienced the same as you? Call or email someone in the association’s contact list. (Still no date given, are free to call anytime.) NORWAY – AORTADISSEKSJON TYPE A Helge Opedal

Interactive disease map

Project CONSENSUS / HOPE

Aortic Dissection WHY – Acute aortic dissection (type A and type B) affects 3 to 4 persons  per 100 000 inhabitants in Sweden every year, but there is a great number of unrecorded, since a lot of persons die at...

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Aortic Dissection Awareness Day

Aortic Dissection Awareness Day

 The Global Aortic Dissection Awareness Day is an awareness day for the global community of people living  with the rare disease aortic dissection....

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Upcoming events:

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Fick min igår under 110 knyck på motorvägen. Ingen pick nick om jag får säga det själv ... See MoreSee Less

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Sitter här och vet varken ut eller in.
Makens årliga aortakontroll gjordes 5 december med njursvikt orsakat av kontrastvätskan. Sjukhusvistelse 9-29 december. 4 januari ringde en hjärtläkare från KS och meddelade att aortan successivt växt alldeles intill hjärtat. Ett läkarteam skulle träffas för att rådgöra om vad som ska göras den 26 januari. Idag med posten kom ett meddelande om att samme läkare skall ringa 23 januari.
Mina funderingar går hit och dit och sömnen blir därefter. Vill dom ha några uppgifter inför mötet? Har dom redan haft det? Vad skall jag få veta? Det vore humant att inte behöva få kallelse så många dagar innan. I lördags hade familjen födelsedagsfest för make/far/svärfar/morfar/farfar. Blev det den sista?
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